How does looking after a spouse/partner with Parkinson's disease impacts on caregivers' relationships with friends and family?

In the UK, many individuals look after their partner/ spouse with Parkinson's disease, to help them cope with the every day challenges associated with the disease.  These caregivers, often inexperienced and unpaid,  assist with tasks such as cooking, cleaning, etc., as well as providing emotional and physical support. 

The impacts of such roles on caregivers are wide, ranging from practical / financial aspects, to emotional and social impacts.  Up to 80% of carers have reported having poor physical and/or mental health.  In addition, many have admitted struggling to maintain relationships with friends and family.

 

This project aims to understand how support networks (friends, family, and members of the community, etc.) can help caregivers cope with the challenges associated with looking after a spouse/partner with Parkinson's disease. 

To take part in this project, participants need to be:​

  • Over 40 years old

  • Have a spouse or partner with Parkinson's disease

  • Currently looking after your her/him

Taking part in the study requires participants to meet with one of them for an interview during which they will be asked a few questions about their experiences as caregivers and relationships with others.

The interview will last a maximum of 1hr. We will organise it at a time and place that suits participants.

A £10 voucher will be given to participants as a token of our appreciation for taking part.

If this is you and you would like to take part, please email Cecile Muller directly: cecile.muller@surrey.ac.uk.

 

Co-I: Dr Anne Arber

We look forward to hearing back from you.

Thank you for your interest in this study.

©2017